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DRAFT — NOT YET IN EFFECT. This Bill of Rights reproduces language from N.J.A.C. 8:42-13.2 and 42 CFR 484.50. It must be reviewed and formally approved by Tender Hand Healthcare Services LLC and its counsel before publication or distribution. Two items marked REVIEW in the source remain incomplete. Delete this notice before launch.
You must be given this notice in writing before your care begins. If you did not receive it, tell us and we will correct that today.

Tender Hand Healthcare Services

Your rights are not ours to give.

You already hold these rights. They come from federal law, from New Jersey law, and from the plain fact of being a person. THHS did not grant them and cannot take them away. What follows is our written acknowledgment of what is already yours — and what you can do if we fall short of it.

An antique key, representing rights already held rather than granted
Yours to hold

Effective date: [DATE]   ·   Last reviewed: [DATE]

Who this covers

Tender Hand Healthcare Services LLC (THHS) serves two groups of people, and the law protects each of them somewhat differently.

Part One sets out the rights of people receiving home health services. These rights are required by New Jersey licensing law at N.J.A.C. 8:42-13.2 and by the federal Medicare Conditions of Participation at 42 CFR 484.50.

Part Two sets out the rights of people receiving developmental disability services through the New Jersey Division of Developmental Disabilities.

Where a right applies to both, it appears in both. Where a guardian or legal representative acts on your behalf, these rights are exercised through them — but they remain your rights, and you remain the person they belong to.

Part One — If you receive home health services

Source of law The twenty-one rights below are reproduced from N.J.A.C. 8:42-13.2, “Rights of each patient.” The regulation states that these are rights “none of which an agency or its staff shall abridge or violate.” THHS reproduces them here in the regulation’s own words, with a plain-language restatement beneath each one. Where the two differ, the regulation controls.
  1. To treatment and services without discrimination based on race, age, religion, national origin, sex, sexual preference, handicap, diagnosis, ability to pay, or source of payment.

    We care for you the same regardless of who you are, what you have, what you believe, or how your care is paid for.

  2. To be given a written notice, prior to the initiation of care, of these patient rights and any additional policies and procedures established by the agency involving patient rights and responsibilities. If a patient is unable to respond, the agency shall give the notice to a family member or other responsible individual.

    You get this document in writing before care starts — not after. If you cannot take it in yourself, we give it to your family member or representative.

  3. To be informed in writing of the following:

    • Services available from the agency;
    • The names and professional status of personnel providing and/or responsible for care;
    • The frequency of home visits to be provided; and
    • The agency’s daytime and emergency telephone numbers.

    In writing: what we offer, who is coming to your home and what their qualifications are, how often they will come, and how to reach us — including after hours.

  4. To receive, in terms that the patient understands, an explanation of his or her plan of care, expected results, and reasonable alternatives. If receiving this information would be detrimental to the patient’s health, or if the patient is not able to understand the information, the agency shall provide the explanation to a family member or guardian and document the provision of the explanation in the patient’s medical record.

    Your plan of care explained in words you actually understand — what we expect to happen, and what your other options are. If we have explained it and you do not understand it, we have not explained it.

  5. To receive, as soon as possible, the services of a translator or interpreter to facilitate communication between the patient and health care personnel.

    An interpreter, as soon as we can get one. At no cost to you. You never have to rely on a relative to translate your own medical care.

  6. To receive ordered care and health services.

    The care your doctor ordered is the care you get.

  7. To participate in the planning of the patient’s home health care and treatment.

    You are in the room where your care is planned. Not consulted afterward — present for it.

  8. To refuse services, including medication and treatment, that an agency provides and to be informed of available home health treatment options, including the option of no treatment and of the possible benefits and risks of each option.

    You can say no. To a medication, to a treatment, to all of it. We will tell you honestly what each choice means — including the choice to do nothing — and then we will respect the one you make.

  9. To refuse to participate in experimental research. If a patient chooses to participate in experimental research, an agency shall obtain the patient’s written informed consent.

    You are never enrolled in research without knowing, and never without signing.

  10. To receive full information about financial arrangements, including, but not limited to:

    • Fees and charges, including any fees and charges for services not covered by sources of third-party payment;
    • Copies of written records of financial arrangements;
    • Notification of any additional charges, expenses, or other financial liabilities in excess of the predetermined fee; and
    • Description of agreements with third-party payers and/or other payers and referral systems for patients’ financial assistance.

    No surprise bills. You are told what things cost, what your insurance covers, what it does not, and what you may owe — before you owe it.

  11. To express grievances to an agency’s staff and governing authority regarding care and services without fear of reprisal, and to receive an answer to those grievances within a reasonable time.

    You can complain, to anyone here, all the way up. Nothing bad happens to you for it. And you get an actual answer.

  12. To be free from mental and physical abuse and from exploitation.

    No one may hurt you, frighten you, or take advantage of you. Not our staff. Not anyone.

  13. To be free from restraints, unless they are authorized by a physician for a limited period of time to protect the patient or others from injury.

    You will not be restrained — unless a doctor orders it, for a limited time, to stop someone from being hurt.

  14. To be assured of confidential treatment of the patient’s medical/health record, and to approve or refuse in writing its release to any individual outside the agency, except as required by law or third-party payment contract.

    Your record is private. You decide, in writing, who outside THHS sees it — except where the law requires otherwise. Our Notice of Privacy Practices explains this in full.

  15. To be treated with courtesy, consideration, respect, and recognition of the patient’s dignity, individuality, and right to privacy, including, but not limited to, auditory and visual privacy and confidentiality concerning patient treatment and disclosures.

    You are treated like a person, in your own home, with the door closed and the curtain drawn.

  16. To be assured of respect for the patient’s personal property.

    Your things are your things. We do not move them, use them, or take them.

  17. To join with other patients or individuals to work for improvements in patient care.

    You may organize. You may advocate. You may work with others to change how care is done — including ours.

  18. To retain and exercise to the fullest extent possible, all the constitutional, civil, and legal rights to which the patient is entitled by law, including religious liberties, the right to independent personal decisions, and the right to provide instructions and directions for health care in the event of future decision making incapacity in accordance with the New Jersey Advance Directives for Health Care Act, N.J.S.A. 26:2H-53 et seq., the Physician Orders for Life-Sustaining Treatment Act, N.J.S.A. 26:2H-129 et seq., and with N.J.A.C. 8:42-6.5.

    Needing care does not cost you a single one of your rights as a citizen. You may worship, decide, and record in advance what you want done if you can no longer speak for yourself.

  19. To be transferred to another agency only for one of the reasons delineated at N.J.A.C. 8:42-6.6.

    We cannot hand you off to another agency for just any reason. The law lists the reasons, and we must have one.

  20. To discharge himself or herself from treatment by the agency.

    You can stop. At any time. You do not need our permission and you do not need to justify it.

  21. To file a complaint with the New Jersey Department of Health.

    You can go over our heads, straight to the State. The number is below, it runs twenty-four hours, and you do not need to tell us you are calling it.

New Jersey Department of Health · Complaint Hotline

1 (800) 792-9770

Twenty-four hours. You do not need our permission to call, and you do not need to tell us that you did.

In writing: Division of Health Facility Survey and Field Operations, New Jersey Department of Health, PO Box 367, Trenton, NJ 08625-0367
By fax: (609) 943-3013
Online: nj.gov/health

“A right you are afraid to use is not a right. It is a privilege you are being allowed to keep.”

Additional rights under Medicare

Source of law THHS is a Medicare-certified home health agency. The rights below come from 42 CFR 484.50, the federal Condition of Participation on patient rights. They sit on top of the New Jersey rights above — they do not replace them.

Before care begins, we must give you

  • Written notice of your rights and responsibilities, and of our transfer and discharge policies — in a language and manner you understand, accessible if you have a disability.
  • The name, business address, and business phone number of the THHS administrator, so you can complain directly to the top.
  • An OASIS privacy notice, if we collect OASIS data about you.
  • A request for your signature confirming you received all of this. You are entitled to a copy.

If you name a representative, we must give them the same written notice within four business days of the initial evaluation visit.

You also have the federal right to

  • Have your property and person treated with respect.
  • Be free from verbal, mental, sexual, and physical abuse, including injuries of unknown source, neglect, and misappropriation of your property.
  • Participate in, be informed about, and consent to or refuse care — including your assessments, your plan of care, which disciplines will provide it, how often, the expected outcomes and the risks, and any change to any of it.
  • Receive all services in your plan of care.
  • Be told, orally and in writing, what Medicare or Medicaid will pay, what they will not, and what you may have to pay before care starts.
  • Receive written notice in advance if we believe a service may not be covered, or before we reduce or end your care.
  • Be told about the state toll-free home health hotline — its number, its hours, and that it exists to take complaints about agencies like us.
  • Be given the names, addresses, and phone numbers of the Agency on Aging, Center for Independent Living, Protection and Advocacy Agency, Aging and Disability Resource Center, and Quality Improvement Organization serving your area.
  • Be free from discrimination or reprisal for using your rights or voicing a grievance — to us, or to anyone outside.
  • Be told about, and given, auxiliary aids and language services at no cost to you.

REVIEW · This section is incomplete

42 CFR 484.50(c)(10) requires us to publish the actual names, addresses, and telephone numbers of the five referral agencies serving each county we operate in. Those must be filled in before this page is published. A generic reference does not satisfy the requirement.

Transfer and discharge

We may only transfer or discharge you for a reason the regulation permits: your needs exceed what we can safely meet; you or your payer will no longer pay; your goals have been met and your physician agrees you no longer need us; you refuse services or choose to leave; a discharge for cause under a written policy; you die; or THHS ceases to operate.

Before any discharge for cause, we must tell you and your physician it is being considered, make real efforts to resolve the problem, give you contact information for other providers who may be able to help, and document all of it.

Part Two — If you receive developmental disability services

REVIEW · Verify against the governing Division Circular

The rights below reflect the principles the New Jersey Division of Developmental Disabilities operates under — individual choice, community participation, and dignity. They are not yet tied to a specific Division Circular citation. Before publication, THHS must confirm which circular governs participant rights and cite it here, in the same way Part One cites N.J.A.C. 8:42-13.2.

Your life is yours to direct

  • You choose. Where you live, who supports you, how your day is shaped, what you do with it, and what you say no to.
  • You may make choices that the people around you — family, friends, staff — would not have made for you. That is what a choice is.
  • You participate in writing your own Individualized Service Plan. It is written with you, not about you.
  • You may change your mind, change your goals, and change your provider.

Your place in the community

  • You have the right to live, work, and take part in your community alongside people who do not have disabilities.
  • You have the right to relationships of your own choosing — friendships, and intimate relationships.
  • You have the right to privacy in your own home and in your own person.
  • You have the right to your own money and your own property.

Your safety and dignity

  • You have the right to be free from abuse, neglect, and exploitation, and to have any such incident reported and investigated.
  • You have the right to be free from restraint and from any aversive practice.
  • You have the right to be spoken to as an adult, in words you understand, in whatever way you communicate.
  • You have the right to complain — to THHS, to your Support Coordinator, and to the Division — without any consequence to your services.

Your rights are not conditional

  • Having a guardian does not remove your rights. It changes who exercises some of them, on your behalf, within the limits a court has set.
  • Needing support does not make you a child, and it does not make your preferences suggestions.

“The dignity of risk is a right too. A life with no possibility of failure in it is not a safe life. It is a small one.”

What we ask of you

New Jersey requires us to inform you of responsibilities as well as rights. These are requests, not conditions. Failing to meet them does not cost you a single right listed above.

  • Tell us honestly about your health, your medications, and your history — it is how we keep you safe.
  • Tell us when something changes: your condition, your address, your insurance, your representative.
  • Tell us if you do not understand something, or if you do not intend to follow the plan. We would rather know than guess.
  • Treat our staff with the same respect we owe you.
  • Let us know if you will not be home for a scheduled visit.

If a right is not honored

Tell us. You may do it by phone, by email, by letter, or by telling any THHS staff member in your home. You do not need to put it in writing, and you do not need to use a particular form or word.

We will investigate, we will document it, and we will tell you what we found and what we are doing. We will act to prevent it happening again — including protecting you from any retaliation while we look into it.

Complain to THHS

Start with anyone here — your aide, your nurse, the office, or the Administrator directly. Going to your aide first is not a lesser complaint. It counts.

Complain to the State

You may call the NJ Department of Health hotline at 1 (800) 792-9770, any hour, without telling us. For DDD services, you may also contact your Support Coordinator or the Division directly.

Complain about privacy

For anything involving your health information, contact the THHS Privacy Officer, or file with the U.S. Department of Health and Human Services, Office for Civil Rights.

Complain about access

If a barrier at THHS left you out, see our Accessibility Statement. We treat that as our problem to solve, not yours.

We will never retaliate

Filing a complaint — with us, with the State, or with anyone else — will never affect your services, your eligibility, or how you are treated the next morning. This is not a courtesy. It is your right under N.J.A.C. 8:42-13.2(a)11 and 42 CFR 484.50(c)(11), and it is the one we take most seriously.

Contact

Tender Hand Healthcare Services LLC

50 Division Street, Suite 501
Somerville, New Jersey 08876
Telephone: 848-316-8540
Email: info@thhs.care
Website: thhs.care

Administrator: Olu Ogunbanjo
Privacy Officer: privacy@thhs.care

You may request this Bill of Rights in large print, in plain language, in another language, or read aloud to you. There is no form and there is no cost. See our Accessibility Statement.